The Foundation

Board of directors

Presidente Manuela Mallamaci

Manuela

Manuela Mallamaci
President and Mario’s mother
Reina Raffo

Reina

Reina Raffo
Vice-president and Luce’s mother
Consigliere Giovanni Zampella

Giovanni

Giovanni Zampella
Advisor and Mario’s father
Luca Battiloni

Luca

Luca Battiloni
Advisor and Luce’s father
Consigliere Giovanni Mallamaci

Giovanni

Giovanni Mallamaci
Advisor and Mario’s uncle

Read our statute

Studio Legale Del Pinto

Lawyer Marco del Pinto, participant of the Foundation and legal support, is the holder of DEL PINTO E ASSOCIATI – LAW FIRM, – with many years of experience in corporate, real estate, financial, contractual and employment law. The legal services provided by Del Pinto e Associati have a strong International and local component. A reference point at a national level: Il Sole 24 Ore has been a respected and prominent Italian law firms since 2022.

CHOPS Syndrome

It’s never too late. With children. Their whole lives are the future!

Medical and scientific advisory board

Dott. Ian Krantz

Dott. Ian Krantz

Dott. Ian Krantz - President
MD, attending physician in the Division of Genetics at Children's Hospital of Philadelphia, Director of the Roberts Individualized Medical Genetics Center, Director of the Center for Cornelia de Lange Syndrome and Related Diagnoses and the Genetics Residency/Fellowship Director. He holds a Distinguished Chair in the Department of Pediatrics.
Dott.ssa Valentina Massa

Dr. Valentina Massa

Dr. Valentina Massa
Professor in Applied Biology at the Department of Health Science, University of Milan, Italy.
Dott.ssa Emanuela Scarano

Dr. Emanuela Scarano

Dr. Emanuela Scarano
Medical director of Paediatrics - Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dott. Katsuhiko Shirahige

Dr. Katsuhiko Shirahige

Dr. Katsuhiko Shirahige
Researcher at Laboratory of Genome Structure and Function, Institute for Quantitative Biosciences, University of Tokyo; Karolinska Institutet, Dept. of Biosciences and Nutrition, Dept. of Cell and Molecular Biology,Biomedicum, Stockholm.
Dott.ssa Eleonora Orlandini

Dr. Eleonora Orlandini

Dr. Eleonora Orlandini
Pediatrician at the Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dr. Neil Hackett

Dr. Neil Hackett

Dr. Neil Hackett
Genetic consultant for the Foundation and Research Professor in Genetic Medicine Weill Cornell Medical College, NY, US.

Professionals supporting the Foundation

Lainey Moseley

US spokesperson for the Foundation, journalist and Leta’s mother. (Leta is the first CHOPS diagnosed kid in the world), Founder of the group CHOPS Syndrome Global. Producer of “Too Rare to care” movie.

Nicola Santobianchi

Physiotherapist at Pt Pro Center, Massa, Italy.

Dr. Fabrizio Giovanni Poggiani

Financial accountant.

Dr. Alessandro Pescari

Financial accountant and supervisor.

Valentina Biondi

Logo Designer

Filomena Cataldo

Press Agent

Fundraisers:

Carmen Massa, Teresa Barbara