Mario sorride in spiaggia
The Foundation

Who we are

We are the first and only non-profit organization focused on driving and accelerating the treatment path for the CHOPS Syndrome, an ultra-rare and multi-organ genetic disease.

We do believe that a diagnosis is the starting point not the ending one: we do not leave room for hopelessness.

After the diagnosis, a fundraiser started in march 2023 gave rise to the construction of this Foundation

CHOPS Syndrome

It’s never too late. With children. Their whole lives are the future!